Knowledge is Power
My sister recently died from an incurable lung disease - Idiopathic Pulmonary Fibrosis. She was diagnosed the autumn of 2014. The average person lives around four years after diagnoses, with the lucky ones being approved for and surviving a lung transplant. Although I think ALS is still the most terrifying disease I can imagine living with, Pulmonary Fibrosis is a close second. It progresses in steps. One day you can for example - get in the tub yourself, bathe and get out, and then the next day, you don't have enough energy to get out. Once the disease has progressed there is no backtracking. After coasting for a few years with very little disease advancement, this time last year she began to use oxygen when out and about. Marilyn and her partner were not Internet savvy. They did not have a computer and she had stopped working just around the time that it all became mainstream. If she had been able to research her disease - she would have lived longer. If she had been able to ...